Ehlers Danlos Syndrome (EDS) is a connective tissue disorder that results from faulty collagen. Collagen is the "glue" of the body's connective tissue. There are 6 types of EDS.
In 2008 I was diagnosed with EDS 3, also known as "Hypermobility Type." The clinical manifestations of EDS 3 are:
Joint hypermobility at or above level 5 on the Beighton scale. The scale ranges from 1 to 9. My score is 9/9.
Frequent dislocations/subluxations and joint pain
Velvety soft, fragile, hyperextensible skin that tears and bruises easily and may be prone to severe scarring. Wounds often heal slowly and poorly.
Chronic early onset debilitating musculoskeletal pain (with hypermobility type).
My personal journey to a diagnosis was not an easy one. I encountered many obstacles on the path to finding a name for the pain and issues I was experiencing on a daily basis. It is my hope that by creating this website I can help ease the path for others and provide good, medically sound information on this debilitating disorder that is very misunderstood, even within the medical community.