Links to good resources

EDS Cares foundation, this website has a lot of great information

http://www.ehlersdanlosnetwork.org/index.html

 

This is the National Institute of Health's description of EDS 3

http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=eds3

 

The EDS national foundation

http://www.ednf.org/

 

EDSers are often called Medical Zebras, and this site has some good info

http://www.medicalzebras.com/

 

This site deals with Marfans, and disability advocacy

http://jrmarfan58.com/

 

The National Marfan Foundation

http://www.marfan.org/marfan/

 

Loeys Dietz Foundation

http://www.loeysdietz.org/

 

A resource and message board for people with invisible illnesses

http://www.butyoudontlooksick.com/

 

Chronic babe, for "babes with chronic illnesses."

http://www.chronicbabe.com/